![](\"http:\/\/www.erzurumflas.com\/wp-content\/uploads\/2020\/12\/sma-hastasi-minik-asel-hayata-tutunmak-icin-yardim-bekliyor_ff07669.jpg\")
U\u015fak\u2019ta 2 ya\u015f\u0131ndaki SMA hastas\u0131 minik Asel, hastal\u0131\u011fa kar\u015f\u0131 zamanla yar\u0131\u015f\u0131yor. Asel\u2019in ikiz karde\u015fini ayn\u0131 hastal\u0131ktan kaybeden aile, Asel\u2019i hayatta tutabilmek i\u00e7in yard\u0131m kampanyas\u0131 ba\u015flatt\u0131.<\/p>\n
U\u015fak\u2019\u0131n Sivasl\u0131 il\u00e7esinde ikamet eden R\u0131fat ve Saadet Din\u00e7 \u00e7iftinin 2 ya\u015f\u0131ndaki minik \u00e7ocuklar\u0131 Asel ve ikiz karde\u015fi Alya hen\u00fcz 3 ayl\u0131kken b\u00fct\u00fcn hareketlerini kaybetti. \u00c7ocuklar\u0131n\u0131 hastaneye g\u00f6t\u00fcren aile, iki \u00e7ocuklar\u0131nda SMA tip 1 hastas\u0131 olduklar\u0131n\u0131 \u00f6\u011frendi. Minik Asel\u2019in ikiz karde\u015fi Alya, hen\u00fcz 7 ayl\u0131kken hastal\u0131\u011fa yenik d\u00fc\u015ferek hayat\u0131n\u0131 kaybetti. Bir evlatlar\u0131n\u0131 topra\u011fa veren aile, Asel\u2019i de kaybetmemek i\u00e7in 2.2 milyon euroluk gen tedavisi i\u00e7in kampanya ba\u015flatt\u0131. Asel\u2019in ya\u015fayabilmesi i\u00e7in bu kampanyan\u0131n y\u00fcr\u00fct\u00fclmesi ve seslerinin duyulmas\u0131 gerekti\u011fini ifade eden baba R\u0131fat Din\u00e7, \u201c25 ayl\u0131k k\u0131z\u0131m Asel, SMA tip 1 hastas\u0131. Yurt d\u0131\u015f\u0131ndaki tedavisi i\u00e7in bir kampanya ba\u015flatt\u0131k. Allah izin verirse de ba\u015faraca\u011f\u0131m\u0131za inan\u0131yorum. K\u0131z\u0131m ikizdi. 7 ayl\u0131kken karde\u015fi Alya\u2019y\u0131 kaybettik. Asel\u2019i de kaybetmek istemiyoruz. Yurt d\u0131\u015f\u0131ndaki tedavide d\u00fcnyan\u0131n en pahal\u0131 ilac\u0131 kullan\u0131l\u0131yor. Tedaviye ula\u015fabilmemiz i\u00e7in kampanyay\u0131 ba\u015flatt\u0131k. Kampanyay\u0131 y\u00fcr\u00fctebilmek i\u00e7in sesimizi duyurabilmek istiyoruz. \u015euanda ila\u00e7tan ba\u015fka Asel i\u00e7in tedavi yok. Makinelerimiz var, \u00f6ks\u00fcrtme makinemiz var, hava makinemiz var. Sabah kalkt\u0131\u011f\u0131m\u0131zda Asel\u2019e hava veriyoruz. \u00d6ks\u00fcrtmelerini yap\u0131yoruz. T\u0131kand\u0131\u011f\u0131nda balgam\u0131n\u0131 al\u0131yoruz. Yurt d\u0131\u015f\u0131ndaki ila\u00e7tan ba\u015fka \u015fuan yap\u0131labilecek bir tedavi yok. Bir ila\u00e7 kullan\u0131yorduk, kanun \u00e7\u0131kt\u0131\u011f\u0131 i\u00e7in o ilac\u0131 da kesildi. Asel i\u00e7in yap\u0131lmas\u0131 gerekenler, bir an \u00f6nce bu kampanyay\u0131 tamamlay\u0131p, k\u0131z\u0131m\u0131z\u0131 yurt d\u0131\u015f\u0131na g\u00f6t\u00fcr\u00fcp bu ilac\u0131 almas\u0131 ve orada fizik tedaviye girmesi. Fizik tedaviyi burada da yapt\u0131r\u0131yoruz ama ila\u00e7 alam\u0131yoruz. \u0130n\u015fallah bizim sesimizi duyarlar, sesimize ses olurlar\u201d dedi.<\/p>\n
7 ayl\u0131kken topra\u011fa verdikleri Alya\u2019n\u0131n mezar\u0131 ba\u015f\u0131nda konu\u015fan anne Saadet Din\u00e7, Alya diye mezar ta\u015f\u0131n\u0131 \u00f6pt\u00fc\u011f\u00fcn\u00fc, Asel\u2019in mezar ta\u015f\u0131n\u0131 \u00f6pmek istemedi\u011fini belirterek yetkililer ve i\u015f insanlar\u0131ndan destek bekledi\u011fini belirtti. Saadet Din\u00e7, \u201cAlya\u2019m\u0131 ziyarete geldim. Ben art\u0131k k\u0131z\u0131m\u0131 mezarl\u0131kta ziyaret etmek zorunday\u0131m. Alya diye mezar ta\u015f\u0131n\u0131 \u00f6p\u00fcyorum. Asel\u2019in de mezar ta\u015f\u0131n\u0131 \u00f6pmek istemiyorum. \u0130kinci bir evlat ac\u0131s\u0131 ya\u015famak istemiyorum. Bu y\u00fczden ba\u015fta say\u0131n valim, belediye ba\u015fkan\u0131m\u0131z ve b\u00fct\u00fcn hay\u0131r sever i\u015f adamlar\u0131m\u0131zdan desteklerini bekliyorum\u201d ifadelerini kulland\u0131.<\/p>\n","protected":false},"excerpt":{"rendered":"
SMA HASTASI M\u0130N\u0130K ASEL, HAYATA TUTUNMAK \u0130\u00c7\u0130N YARDIM BEKL\u0130YOR<\/p>\n","protected":false},"author":1,"featured_media":1554607,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[14,20],"tags":[110175,91124,12815,15204,16363,13197,12563,67671,1105],"class_list":["post-1554606","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-saglik","category-turkiye","tag-tutunmak","tag-asel","tag-bekliyor","tag-hastasi","tag-hayata","tag-icin","tag-minik","tag-sma","tag-yardim"],"_links":{"self":[{"href":"https:\/\/www.erzhaber.com.tr\/index.php?rest_route=\/wp\/v2\/posts\/1554606","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erzhaber.com.tr\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erzhaber.com.tr\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erzhaber.com.tr\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erzhaber.com.tr\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1554606"}],"version-history":[{"count":0,"href":"https:\/\/www.erzhaber.com.tr\/index.php?rest_route=\/wp\/v2\/posts\/1554606\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erzhaber.com.tr\/index.php?rest_route=\/wp\/v2\/media\/1554607"}],"wp:attachment":[{"href":"https:\/\/www.erzhaber.com.tr\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1554606"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erzhaber.com.tr\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1554606"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erzhaber.com.tr\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1554606"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}